Carol A. Kelly, RN, BSN

Organizational thought leader with a strong focus on patient-centricity. Over 10 years of neurosurgical experience at Thomas Jefferson University Hospital in Philadelphia, PA. Clinical expertise in rare diseases; lysosomal storage disease, spinal muscular atrophy, dystrophic epidermolysis bullosa. Engagement and education strategist, KOL/KCL advocacy development in the biotech industry; experience with REMS (Risk Evaluation and Mitigation Strategies) programs. Ms. Kelly offers a unique blend of leadership and coaching qualities. Experienced in brand strategic planning, patient/caregiver psycho-social support, HUB collaboration for logistics/reimbursement challenges and implementation, and building solid relationships with advocacy organizations supporting rare /ultra-rare diagnoses.

Led clinical teams at Horizon Pharma, AveXis LLC, and Novartis Gene Therapies. Clinical Consultant for the Epidermolysis Bullosa patient community.

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Education & Training:

• Penn State University, Bachelor of​ Science in Nursing, State College, Pennsylvania